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Tag Archives: Retinitis Pigmentosa

  • How to Pull Yourself Up When Life Throws You Down

    Posted on December 13, 2019 by in Featured

    This vision loss thing has knocked me down hard plenty of times over the past year. And I know I’m not alone when it comes to the pain of this and other knock-out blows that life occasionally delivers. The only real question is how to get back on our feet once we regain consciousness and […]

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  • How Do You Define Disability?

    Posted on December 6, 2019 by in Featured

    I never gave much thought to the word Disability until I was slapped with that label and told to expect widespread stigma and social isolation. That’s when I understood just how messed up these ingrained prejudices and assumptions are when it comes to people dealing with a challenge that has been shoved under the disabilities […]

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  • It Starts With Self-Love

    Posted on September 26, 2019 by in Featured

    I’ve been mean to myself before. But I didn’t realize just how self-bullying, belittling and cruel I could be until my eyesight took a nose-dive last year. Suddenly I could no longer see my family’s faces or the world around me. And I hated myself for it. I have always been an optimist and a […]

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  • Determined to See

    Posted on February 21, 2013 by in Articles

    A couple of weeks ago, I embarked on a year-long quest to heal my eyesight working with Dr. Yu at the Wellspring Clinic in Vancouver, Canada. Wellspring, which utilizes Chinese medicine, has been working with RP patients for thirteen years and has had helped a lot of people struggling with Retinitis Pigmentosa to maintain and even improve their vision.

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  • FOCUS, My Memoir About Life with Retinitis Pigmentosa is OUT!!!

    Posted on October 28, 2012 by in Articles

    When I was diagnosed with RP eight years ago, I chose the path that I felt would keep me safe: denial and hiding.

    I was scared that people would discriminate against me if they knew I was losing my eyesight. And I was petrified of showing the world that I was vulnerable. But after six years of living in the closet, I finally realized that talking openly about my degenerative eye disease was empowering and educational. I realized that if I was okay with who I was, other people would be too. And if not, so what?

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